Sunday, February 8, 2009

Life with and without cancer...

So, it was a week, to be sure. Bo had his scans on Monday, and pre-op. The scans were clear and his procedure went as well as could be expected. He is a little sore and had to miss Show Me State Games with his basketball team, but such is life. At least his port is gone. But there was some sadness around the fact that we will no longer be able to find Bo with a metal detector--fortunately he keeps growing so chances of losing him get slimmer every day.

However, I still feel like I live in a strange cancer epicenter. We recently found out that one of Jay's colleagues has a terrible case of bile duct cancer, and a new friend of mine found out that she is facing a cancer recurrence. After six years, she must face the confusion and fear of treatment. Fighting for all the little bits of information, trying to make the best choices and understand all the options all while caring for a family and not finding the best support is not something I wish on anyone.

So, on Friday night I put the boys to bed and I cried--for closure and relief, or perhaps for mourning, maybe in grief, I'm not really sure. I just know that I have arrived at "a certain age" (I still maintain I am 32) where death and dying and family problems will be a very real part of life. It is true that without sadness, you don't get to fully appreciate the happiness, but why is it that life experiences seem to come in the wrong order? Who doesn't look back on their youth and wish that they could do it over with just a fraction of the wisdom and confidence of an adult--just live it up knowing that whatever Suzie said about you to Brian on Tuesday will not matter past Wednesday. And who doesn't wish that just a few of life's difficulties could come a little earlier so that we could be better prepared. Hell, even if I could have had allergies or knee problems earlier in life, I might have worked harder to take care of myself...well, or not...

All I know is that I will never be able to look at people the same again, for better and for worse. I much better appreciate all the trouble people carry, but I am less tolerant of selfishness. How is it that some people can't or won't come through? Why does crisis bring out the best in some and the worst in others? As our country faces what are bound to be a rough couple years, I wonder that same about all crises, not just cancer and health problems. Why are there so many people doing great things, and yet so many Madoffs who will take all they can and run. Where is the happiness in that?

Anyway, too many issues too big for me. I can't even get a couple cancer support teams running, for heaven's sake! We tried, for those of you wondering, we started a team for preteens struggling with the loss of a parent, but the bottom line is there isn't enough TIME in a week! But, now thanks to an inquiry from a kind woman named Rita in Macon (who happened to work at MODOT in what I think is the best office building ever) we are investigating the possibility of "virtual teams." Since kids are so much more comfortable online than they are even in person, there has to be a way to use Facebook, or Yahoo Groups, or even plain e-mail to facilitate online support teams.

So, we are still working on developing the Cancer Club and if anyone has any ideas, feel free to share. Hope everyone has a great Valentine's Day--I personally think the holiday is a scam, but I am very fond of chocolate strawberries from the Candy Factory and the lovely boxes of Godiva you can get on clearance the week after! Life is short, so be thankful for small graces, Lisa

Thursday, January 8, 2009

Scheduled to be Deported

That's right, while he is not an illegal immigrant, Bo will be deported on Friday, February 6th. He will go in for scans on Monday, and do all his pre-op, then if everything is clear, and we expect it to be, he will report on Friday at 5:30 for 7:00 surgery. The removal should only take 30-40 minutes, then when he is awake and taking fluids he gets to go home. The end of a long year will soon be here. I may blog more later, but now I have to go work! Have a great day, Lisa

Wednesday, December 10, 2008

The Thankful Season

Bah humbug--I'm a Scrooge! I don't understand how Black Friday shopping got all mixed up with the virgin birth of the father of Christianity. I think a few years of working retail cured me of any former love and fascination with the winter holidays. Or, on second thought, maybe it was the Christmas I scratched my cornea decorating the tree and I had to drive myself to the hospital in the middle of the night but the pain was so bad I had to pull over to throw up--no I am pretty sure it was retail.

I worked at Marshall Fields, in china and gourmet the Christmas I was pregnant with Pierce, a job I did for several years and LOVED until that particular Xmas season. Besides the usual crabby customers and merchandise mix-ups, that year there was the day that I was fully eight months pregnant helping a customer who had purchased pillows. While she was in line in our department she decided she needed a box, but she and her companion also decided they needed to go back and get the matching pillow since it was likely it would be gone if the recipient decided they needed two after the holidays(this was a decorative pillow, so supply was always uncertain). I told her that while I was perfectly willing to get a box, if they were going back over there, it would be easier for all concerned, especially the other ten customers in line, for them to get a box while purchasing the second pillow because I would also have to go all the way over there to find a box that big. Well, this woman looked at me up and down and said "it's probably better that you go get the box since you obviously need the exercise." Mind you, each of my children gave me ten pounds I have never been able to lose so someone might fairly say that to me now, but I was in great shape at that point in my life, but HELLO, I was eight months pregnant and my only concession to getting larger was size 10 clothes versus the 6s I was wearing previously. I was hardly fat, and even if I was, who was she to tell me I needed exercise? Then there was the horrible woman who insisted that I find some obscure piece of holiday china that she had to have right that moment which required me to climb to the very top of the seven foot ladder in the storage room and perch precariously over the shelf, again while eight months pregnant!

This year we are hosting Jay's colleagues at our house for a holiday party. This will not be a big to-do since I know and love all of them, and they know us and our common existence with our very bad dogs and two children, but there has been a lot of work we have needed to finish on our house and my beloved decided we should finish it before the party on Sunday. So, we are painting. We finally removed the blinds Homer destroyed (that's also another story that is worth telling someday, but in summary I personally KNOW someone that was featured on America's Most Wanted--how's that for a teaser?) and painted the window frames that have been hidden for at least 10, but more like 30 years... Oh, and then there is the matter of what used to be the "playroom" that I so lovingly decorated for my babies that Bo now calls his room--that he wanted Tiger Gold. Anyone considering Tiger Gold may want to visit our house before purchasing paint--it is SOME color, that is all I can say.

So between horrible memories of holiday retail, a dog that loves poopsicles, painting--which I HATE, and our Christmas decorations in a half-done state, I am not lovin' the holiday season. But, it is not only the season of rampant commercialization, hyperbolic consumerism and wanton greed, it is also a season of faith, love and thankfulness--that I get. So I wanted to share my top ten list of things for which I am thankful!

1. Pathologists, oncologists, nurses and other health professionals
2. Friends, both known and unknown who hold you up when you need it most
3. Farmers and all the people who perform daily hard labor with little recognition
4. Voters, no matter who they voted for--for keeping the dream alive
5. Teachers and coaches who give their lives to shape the lives of others
6. Emergency service professionals who risk their lives for our safety
7. Dogs, even the ones who eat poopsicles, for making life a little lighter
8. Patrons of the arts who maintain our culture, especially in tough times
9. My Super Suppers colleagues for making it a joy to be a small business owner
10. Jay, Pierce and Bo, for making life worth living, even in the dark hours

I hope everyone takes some time to appreciate what we all have, even when the economy is at its worst, we will still have more than so many and we must never forget the pains it took to achieve. Have a wonderful holiday season, filled with love and laughter, skip the stores, all the stuff is cheaper in January anyway. With love, Lisa

Saturday, November 15, 2008

Just When You Think It Can't Get Worse...

Life delivers punches every day. You learn to roll with the little ones, but every now and then you get knocked down. All are well here in mid-MO, despite the fact that a very nice young college student totalled our car yesterday. More on that in a minute, but I can't stop thinking about how a little punch to one person can be a real knock out for another. With the economy the way it is, so many people are one little car accident or brush fire or illness away from financial tragedy. How in the world is our new President and Congress going to fix the mess we've gotten ourselves into?

For those who know Columbia, just after it started to pour yesterday, we were headed to Robotics, driving down Forum, starting to go up the hill, and I thought to myself, I have to be very careful and pay attention to the drivers coming down the hill, and not a second later, I saw headlights coming straight for me. I drove onto the shoulder but resisted driving onto the grass since I was not sure how much room there was to drive safely. Just when I thought I might avoid an accident, I felt the hard crack and saw myself go spinning. I have never been more relieved to hear my kids scream. It meant they were both alive, but I felt a small panic knowing that she hit me right in the gas tank, then remembered I had been driving on empty all day...

So many things for which to be thankful. Thankful no one was hurt, actually somewhat thankful sbe hit us and not a tree, because as fast as she was sliding, she might not have survived, thankful I never stopped to put gas in my car, thankful I never cancelled my collision coverage, and thankful that this little accident won't put me over the edge. But, as a business owner, I have become more cognizant of those who are so close to the edge. There are probably a hundred people I know personally who would be devastated to lose a car. We had the luxury of three, so while my life gets a little more inconvenient, we will survive. And I am more than a little annoyed that that car was worth way more to me than the $2000 or so the insurance company will honor, but I am not going to lose a job or life over that loss.

In this month of thanks giving and the season of giving, take more than a minute to give thanks for everything you have, no matter how meager it seems. Make amends with a loved one and do a good deed. Pay it forward as much as you can since you never know if that knockout punch might be the next one. But also think about giving with meaning. We all need to curb the excessive materialistic tendencies we have nurtured for a decade and know that times are tough and will probably get tougher. Give from the heart and give where it can make the most difference. With lots of love and even more appreciation of life, Lisa

Monday, November 10, 2008

Free (or very cheap) Tickets!

In case you didn't know, Super Suppers is a sponsor of KBIA and the University Concert Series. We love the Concert series and have always been supporters. Donors are treated to a reception before most events, and we cater about three of these a year.

Our sponsored show this year is Sweeney Todd which is this coming Thursday, so we will be catering--Thanksgiving dinner will be the menu, and it should be scrumptious--I haven't fouled one up, yet and we have always gotten rave reviews, but you know, there is a first time for everything and I am not immune to mistakes! But really, I have at least four extra tickets to that show and the reception, plus four tickets to both the MU Choral Union: Gloria Thursday, November 20th, and Nebraska Theatre Caravan: A Christmas Carol, Thursday, December 4. Call or e-mail if you want them! You can have them, or if you are so inclined, you may make a donation to the Cancer Club--our first group is going well, and we hope to add more when we can! Stay warm and dry, Lisa

Thursday, October 23, 2008

When is "just a lump" not "just a lump?"

Well when you've had a cancer diagnosis of course! I felt like I had finally gotten over the bizarreness of the summer when Bo started complaining about a lump under his tongue. So, remember the whole thing about his condition, whatever it is, is related to common salivary gland tumors, both malignant and benign. Wanting someone to check it, but not wanting to overreact, I called our dentist. I adore my dentist, but I admit I am still a little annoyed. He immediately referred us to a world-class surgical oncologist and made us spend a good solid weekend worrying. Of course by Monday we went back to the dentist who concluded that it was "just a lump," a common canker sore, to be specific, and it was gone. The lump and swollen node he felt a few days earlier were now hardly discernible. So, we still went to see the specialist on Tuesday who confirmed that everything was just fine.

But, it was not something I was prepared for, or warned about. Apparently, once you've been "marked" you no longer get to have normal ordinary ailments anymore. No doctor wants to make the call that it's "just a lump" or a sore, or anything, without referring to a specialist--CYA, I guess. I get that, and I could have expected it rationally, but I still wish I had the Dummies Guide to Cancer so I could have been properly warned that we, too, should hesistate before having every little lump or bump checked, and be prepared that every wart will be examined by an oncologist. Okay, I know that's an exaggeration, but it was not a fun weekend.

And on that note, our first Cancer Clubs will meet on Monday, October 27th, at 6:30, at Bethel Church. The kids' club will be for kids who have lost a parent to cancer. Our known attendees will be aged 10-14, but kids slightly older or younger are welcome to attend and we will break them up when we have enough members to form two groups. At the same time, the parents of these great kids will meet at a place in the building, or close by, where they too, can process their experiences--maybe the output from all our groups will be the true Dummies Guide to Surviving Cancer. If any of our Columbia friends want more information, feel free to contact me at thecancerclub@aol.com, or 573.268.4766!

Advertising these groups has truly been a rewarding labor of love. I have never felt so lucky to be working. Finding my way around the downtown churches was quite an adventure, but with the exception of one elementary school, people were so thankful and wonderful. I think being a kid is pretty darn hard, period, but being a kid that has to face such a huge loss, to put it bluntly, just sucks, and so if we can help even one kid have an easier time making lemonade out of life's lemons, I will have led a good life! So, back to making my own lemonade out of my crazy business... With love, Lisa

Friday, October 10, 2008

What do YOU do With Your Pain?

So, I have been processing a lot of things lately. I have had the time to step away from the summer and the pain and the fear and just think about what it all means. I have also been reading--yes, I know that scares you all, but reading is therapeutic for me. I have read a lot of books lately, Anne Lamott-Grace (Eventually), Glass Castle, a history of the Mormon church, and a bunch of other stuff, plus talking to people who might benefit or help in the development of our cancer center, and it got me thinking.

We all have pain in our hearts, maybe from childhood--mean kids at school, parents who always seemed to want that little extra, no matter how good you did, maybe it's from a current relationship, personal or business where you give a LOT more than you get, maybe it is children, who, for reasons you may never understand do not have the same relationship with you that you desire. Or, perhaps, you are the one in a million that has never experienced pain. In either case, what do you do with that? If your psyche is a suitcase, and all your "stuff" is packed in there, is it neat and tidy, is it really big and heavy, or do you disguise it with a mental "tablecloth" to make it prettier? Where does your baggage take you?

I have pain. I can admit that. It doesn't matter where it comes from--a large part of it has to do with being a "weird" and ugly kid and I can tell you if you really want to know--but what really matters is what I do with it. So many people carry their suitcase like a weapon, swinging it around and making sure no one gets close. A lot of people use it as a shield, so that no one gets close enough to look inside. Others hide it and pretend they don't have a suitcase, even though other people can feel that you seem to live in a big tent. I am sure I can't tell you what is in the bottom of my suitcase, but I do know that in many ways it sustains me. The fact that I know pain is what allows me to see the pain in others and try my very best to alleviate some of it, with all the power I have. I have learned that I am not very good at making money. But today when a customer told me that when she left last weekend and I told her to "enjoy her guests" and it resonated with her all weekend because, thanks to us, she WAS able to enjoy her guests, that sustains me.

I was raised a Lutheran and the major philosophical difference Martin Luther had with the Catholic Church was the notion that God's love is grace freely given--that we don't have to do lots of stuff to get it--but the corollary is that to whom much is given, much is expected. And I know that whatever pain I have experienced, there are others who have endured much more, and I have been given many gifts that I am obligated to share with others. I have been given health, a tiny bit of wealth (but since the DOW dropped another several hundred points today, it's a lot less than I wish!), a decent amount of intelligence and thanks to what is probably undiagnosed ADHD, a LOT of energy.

What do you do with your pain? Do you wallow in it, hide it, let it make you angry or distant and detached from others? I have done all of the above, sometimes. And sometimes the unproductive things feel good. I have spent the better part of the last day exuding vile rants on my corporate bulletin board because of some ridiculous changes they want to make--yeah, it kind of felt good, but then I tried to counter some of it by posting a few positive things that we have learned lately. It is good to work out that pain in the gym, that is way productive, and I have not done that nearly enough lately.

But the best way to channel pain is into preventing it. How can you use your gifts to improve the lives of everyone around you. If oyu have never read The Fred Factor, that's a good one to try, too. Fred was a mailman who made a difference just by being a mailman. We all have the power to make the world a better place and if we took just one capful of positive energy every day and pour it into the vat of humanity, we can make a great stew. Researching this cancer support center has nourished and energized me in ways I never imagined--then I got a cold, but I am pretty sure that's temporary and I am looking forward to moving onto great things. The weather in mid-MO has been phenomenal lately, I hope everyone is taking advantage, with love, Lisa